We made it HOME

Hi Everyone!

Sorry about not updating more-I found the hospital had blogger blocked and It was very difficult to continue to update from my phone! Then once we got home life got a bit crazy.

Caleb slept really good Thursday night. He was not happy about the nurses coming in to take his vitals though.

Friday was filled with more doctor and nurse visits, playing bingo, having dog visits, playing in the playroom and watching LOTS of MOVIES. Caleb wasn't eating much (the only thing we could get him to eat was Mac N Cheese). They originally thought he would be able to go home Friday afternoon but the more the day went on we soon realized we wouldn't. Caleb still was getting his meds by IV (he had to be getting them by mouth) and his tummy was pretty swollen. They really wanted him to be passing gas and have a bowel movement so they highly recommended that we stay another night-while we really wanted to take him home, we decided to keep him there.

He slept super Friday night but decided it was wake up time at 6:15. I did not sleep well between being uncomfortable and the extra noise (they had to change our rooms). The doctor came in Saturday morning and Caleb's tummy wasn't as swollen anymore but he still had not had a bowel movement. He was taking his meds by mouth. The Surgeon said that we have pretty much hit a wall and he probably won't get better staying in the hospital. We packed up our things and headed home.

Caleb was still pretty whiney Saturday and didn't want to move too much. He did however want to ride his scooter and swing right when we got home. Both of which were okay to do per the doctor. I am amazed at how fast he has bounced back. Sunday he was pretty tired but wanted to play the kinect and went for a bike ride to the park with Daddy.

As far as the surgery, it went MUCH better than expected. They originally thought they would have to remove the whole adrenal gland but they found out that they did not need to. We have gotten the preliminary pathology report back saying that the tumor was in fact benign and what they call a ganglioneuroma tumor-the one of the most Bengin tumor possible. It is basically a tumor filled with just a bunch of nerves. We are to meet with the oncologist later this week to get a action plan to make sure it doesn't grow back and to make sure that there is nothing else we need to do.

Thank you all for your thoughts and prayers!

Love,
~Heidi